Month: April 2021

When the flowers stop

In August last year, an incredibly lovely person told me her mum had said to her at the beginning of my journey that the hardest time may be some months later “when the flowers stopped coming.” It’s stuck with me ever since. Because it’s absolutely true.

To mark his anniversary, flowers came into our house again. The smell was beautiful, I was so grateful, and it got me thinking back to when Mr C died. We were inundated with flowers. At one point, I had 14 vases around my house. The smell was beautiful. I was so very, very grateful. Until they died. Because they made work for me by dying. I vividly remember standing on my driveway yelling at my mum and stepdad while trying to consolidate vases and get rid of the flowers that had now died on me too. A gust of wind knocked a vase over and it broke. I yelled some more. My husband had died and now I was having to deal with dead flowers and smashed glass, I had enough to do, I didn’t want to deal with this as well.

That moment was the first time I’d really thought about the expectations, actions and support those left behind need when someone very close to them dies. I’ve nearly always sent flowers when people have lost a loved one, you are limited with the support you can show, and flowers are a nice way to do this. But not anymore. When one of my closest friends lost her partner to COVID in January, I didn’t send her flowers. I thought about what had been most useful to me and used that for ideas. One of the most memorable gifts I had was from a friend who said “don’t judge me” when she gave it to me. It was a bottle of gin, a bottle of tonic, a box of tissues, ready meals, bubble bath and hair dye. She thought I’d be stressing about my hair with hairdressers shut. She was right. That morning I’d sent my mum out to buy me hair dye ahead of the funeral.

When he died, we were inundated with messages. I spent almost every evening responding to them. We were inundated with support. We were inundated with people telling us they’d be there for us. Some of them have, some of them haven’t. We were inundated with people telling us to do what we needed to do. There was no expectation put upon us. We were just allowed to be. But as with the flowers stopping, the messages dwindled. It was unsustainable for such frequent contact to continue. I know that, everyone has their own lives to lead, the world didn’t stop because my husband died. But it doesn’t mean I need them any less. It doesn’t mean I need the support any less. Equally the lack of expectation also seemed to stop. Because when it comes to grief, everyone has expectations. Whether they know it or not.

When I returned to work, there was an element of surprise. It was too soon. Shouldn’t I give myself more time? Wasn’t I putting too much pressure on myself? Was I being fair on my daughter? Turns out I wasn’t conforming to the expectation people had. I absolutely know that people said this with the very best of intent and it was lovely to have such care shown towards me, but it started to show what I’d now be navigating as I walked along this new path.

I’ve been exposed to the expectation to move on when you’re widowed young. It was during one of my few visits out that I first came across it. I bumped into someone who knows my mum and was asked, “are you over it yet?” It took me a good few minutes to work out what they were referring to. I wasn’t expecting to be asked if I was over it six months after losing my husband. We chatted for a bit longer and they ended the conversation with “I wouldn’t worry about what’s happened, you’re a good-looking woman, you’ll find someone else. Don’t worry.” I was flabbergasted. Their attempt at comforting me I’m sure. And yes, while I totally acknowledge that I have no idea what my future holds, I do know that it won’t be a case of moving forward and not remembering or worrying. Irrespective of my future, part of me will always, always be Mrs C. Charlesworth. Charlingtonsworth. Or any of the other names that I’ve become accustomed to being called since I got married.

The hardest expectation though is about how I should behave. I’ve been told so often how strong I am, that it’s like there’s an expectation on me to be on my best behaviour and not show when I’m under pressure. That it’s not strong if I do that. I refuse to do this. I won’t put on a mask and pretend I’m ok. I did that once and learnt the hard way that it doesn’t work. But I sometimes wonder if I’m expected to. A perfect example took place in the run up to Christmas. I was openly struggling, life was the hardest it had been for a few months and beyond stressful, we were finding the third lockdown hard and I was dreading Christmas. This culminated in a conversation where I was short with someone. I used a tone. I was blunt. I admit it. I used a tone and was brutally honest in the conversation. I know it. But this resulted in me being told they were “not accustomed to being spoken to in the manner that I adopted.” It was used as a contributing reason for them distancing themselves not just from me, but from my daughter. And this stopped me in my tracks. To be told that hurt. It was a one off during a particularly stressful time. It was the first time over the nine months since losing Mr C that they’d seen me like this. Where was the support? Where was the understanding? Why wasn’t I allowed to have an off day? Why was this held against me? Against my daughter. As time has gone by and I’ve thought about it more, I think it’s because of the expectations and perceptions surrounding grief. When you’re perceived as strong and as time passes, you’re no longer meant to have off days. You’re not meant to need the support in the way you did at the start. The taboo of talking about grief means people don’t understand that off days and the need to be supported will be a way of life for me for an exceptionally long time.

But I’ve equally found myself having expectations. For people to treat us in the way that I’d treat them. I expect them to behave as I would. As Mr C would. He would, and I do, expect more from people for our daughter. Irrespective of what was usual before he died, I firmly believe, and expect, people should show up for her more because life is different now. It’s a new playing field. She was just 10 when her daddy died and the rules have changed. Maybe I’m wrong to feel like this. Maybe I’m wrong to expect things to change. Maybe it’s me that actually has unfair expectations. But when your life has been overwhelmingly changed beyond all recognition, your outlook and expectations change too. It’s inevitable. It’s why Mr C changed after his cancer battle. It’s why I know that if the roles were reversed, he’d feel and be having the same expectations that I do.

I know I’ve changed since he fell ill. I know there are people I’m far closer to now than I was then. There are people in my life now who are only in it because of what’s happened. There are people I’m not as close with. Partly I’m to blame. I know I don’t make as much effort with people as I used to. I don’t organise in the way I used to. I have far less tolerance for seeing other people’s mundane or first world problems. But I’m just so tired. I’m juggling being a solo parent while working full-time and running a household and all that that entails. Oh, and just the small matter of grieving for my partner of 21 years. The father of my child. Sometimes messaging or ringing people is just one more thing that I don’t need to be doing. Or I simply forget to. I suspect there are some who are uncomfortable with my honesty and talking about what’s happened. I suspect there are some who find it difficult to know what to say to me. I suspect for some it is easier to walk away because it’s too hard to walk this path with me. Because I’m a different person now. And there are some living with their own challenges who just don’t need mine on top of them.

But I’ll always be so grateful to those who have been there for me since the flowers stopped. They are the ones without expectation. They are the ones who have become my scaffolding, holding me up on this rollercoaster. They are the people who will help me get through whatever the future brings. I can honestly say I don’t know what it looks like. These people and the expectations on me could all change. As with 2020, I know the flowers will stop again. But the hard times won’t. The challenges won’t. But it’s knowing that there will always, always be people giving me the support I need during the hardest of times which is so invaluable.

Goodbye Mr C

I guess if I’m honest, I’d been expecting the call I received on the morning of 19 April for a few days. Expecting, yes. Prepared for, no. But then, I’m not sure anything could have prepared me for the call to confirm that my husband of 14 years and partner of 21 years was going to die. I vividly remember where I was when the call came, I was helping my daughter tidy her bedroom. I sat on the floor in her room and tried to process what was being said to me. Did I want to go into hospital to say goodbye? The offer was made, but if I’d said yes, I’d have had to self-isolate away from our daughter for seven days. It wasn’t really a choice; I couldn’t be away from her and she couldn’t be away from me in the seven days after losing him.

Almost at the same time as the phone rang, our doorbell rang. Our daughter went downstairs to answer it and it was my mum on her daily walk just checking in. As I sat on the floor on the phone to the amazing ITU staff, I knew as soon as I hung up the phone, I’d have to go downstairs and tell our beautiful, brave little girl that her daddy was never going to come home. It took everything I had to get up off the floor and do that. I remember telling her that her daddy was going to be the brightest star in the sky. What else I said to her, I have no recollection of. I just hugged her. I didn’t know what else to do. My mum, standing on my driveway, had no option but to watch as her eldest daughter and granddaughter fell apart.

But we composed ourselves. Because we had to say goodbye to him. Thanks to Mel and Sharon, our amazing “Skype Angels” we’d been speaking to him every day for a week. That day, I was asked if we wanted to do it again. I didn’t hesitate to say yes. There was so much I needed to say, despite not knowing how to say it. So, for the very last time, we dialled in. For the very last time, I saw my husband. For the very last time, she saw her daddy. Family photos and her get well card were laid around him. I told him how proud we all were of him for fighting for so long. I apologised for the fact I hadn’t been able to protect him from this. I told him how much everyone loved him. I said thank you for everything. But it still didn’t feel real. After 21 years which had seen a cancer battle, a break-up, losing a baby, living with my depression and anxiety, was this really how our story was going to end? Via an iPad and Skype call? This couldn’t be right. This wasn’t how our story was supposed to end. We had so many plans. He hadn’t had a cough. He’d walked to the ambulance. How was he not coming home? But a couple of hours after our Skype call ended, the ITU team rang to tell me he’d died. My life with Stuart “Charlie” Charlesworth was over.

I didn’t know what I was meant to do next. I didn’t know how to tell people he’d died. So, I didn’t for a while. My daughter and I finished the film we were watching. Because I knew that even when I told people, no-one could do anything. No-one could come around and look after us. In my head there was no rush. I didn’t know when, or if, people would be ready to find out they needed to say goodbye to Mr C. But slowly over the course of the next few hours, I made the calls. I sent the messages. I watched as the notifications on my phone started mounting. As the kindness shown towards us began to escalate. The food voucher that was sent to save me having to think about cooking. The next day the first shepherd’s pie arrived courtesy of my friend. The first sympathy card arrived. I looked at it and put it back in the envelope. What use was this to me? I didn’t want sympathy; I wanted my husband home.

Friends and family just needed to see us. But we were living in lockdown, it wasn’t that simple. Some did ring our doorbell. Some ended up leaving with ginger and cherry Pepsi Max! Why? Because I don’t like it, he wasn’t coming home to drink it, so what was the point of keeping it? They so very graciously took it from me, but at the same time must have thought I was losing my mind. My husband had died 24 hours ago, why on earth was I worrying about getting soft drinks out of my house? But it was the only way I could begin to take control, to begin to try to accept what was happening. He really was never coming home.

Three days after he died, I went to the hospital to collect the few belongings he’d taken in with him. For the first time in over three weeks, he and I were in the same building. Just for a few minutes. I felt numb. Even though I couldn’t see him, something in me just needed to be there. I needed to be in the same building as him. Later that day, the call came from the funeral directors to tell me he was now with them, but due to the restrictions in place, it didn’t mean a thing to me. I wasn’t able to see him. I wasn’t able to give them clothes to dress him in. Was he really there? Had he really died? Or was this all some nightmare I was going to wake up from in just a few minutes?

But as the days went by, I didn’t wake up from a nightmare. Because this was real. I really had said goodbye to Mr C via a Skype call. People kept talking to me about a funeral. I didn’t care. I didn’t want one. I was 39, I didn’t want to be planning my husband’s funeral. I wanted him to come home. I wasn’t ready to say another goodbye. But I had to, and I did.

Yet as I sit here now, a year on from that fateful call and fateful day, I realise that we’ll never really say goodbye to him. Mr C will always be part of who we are. He will always be a part of our lives. I think back to the situations over the past year where I’ve had to make a tough decision. Every time I’ve faced these, I’ve asked myself what would he do? And every time, I’ve landed that he would be doing exactly what I’m doing. I watch our daughter load Spotify to listen to Train, Tenille Arts or the Kris Barras Band (among many others) knowing that it’s his influence that makes her to do this. There’s not many 11-year-olds who would know these artists. She does. She sings the lyrics with as much passion as Mr C did. I watch our daughter make statements or pull facial expressions which are just like him. I’ve lost count of the number of times I’ve said, “she’s her father’s daughter”. I don’t know if I see it more because he’s not here, but she really is. He’d be so incredibly proud of her. She will never, ever be allowed to forget whose daughter she is.

And as for me? My first year as an adult without him is now complete. I wish every single day with everything I have that he was still here. Telling me about another board game on Kickstarter. Twiddling our photos. Cooking my dinner. Doing nothing with me. Rolling his eyes at me. Despairing at my love of Jason Donovan. Yet while he’s not physically here, his influence and his legacy are. Living on in us. I know I’ve been able to get through this past year because of him. I know I’ll be able to get through the next year because of him. Because of the love he gave us. Because of everything he taught me. It hit me when our daughter was singing a song from Wicked at the top of her voice. The lyrics say it all.

I’ve heard it said
That people come into our lives
For a reason, bringing something we must learn
And we are led to those
Who help us most to grow if we let them
And we help them in return
Well, I don’t know if I believe that’s true
But I know I’m who I am today
Because I knew you

So, thank you Mr C. I’m so grateful you chose to spend your life with me. Because as Winnie the Pooh says “how lucky I am to have something that makes saying goodbye so hard.” He really is a wise old bear.

A year of firsts

A couple of weeks before my birthday, a friend of mine said to me “you’ve almost done it now, your year of firsts, only a couple more to go.” In so many ways, he was right. Yes, I’ve done the first Father’s Day, Mr C’s birthday, wedding anniversary, Christmas and Mother’s Day. Yet in so many ways, he was wrong. There are a whole host of other firsts that I would “normally” have done in this year that I’ve not been able to. I, like so many others who have lost a loved one during this pandemic, have had their grief essentially put on hold.

For there is still so much I haven’t done without him. There is still so much as a family we haven’t done without him. A year ago today I was told for the first time to prepare for him to never come home. I made the calls to friends and family to tell them the next 24-48 hours were critical. That night was the first time I’d ever really thought about what my life might look like without him. But I still didn’t try to think about it too much. He could beat this. Whatever it would take for him to beat this and however long it would take for the recuperation, we could do it together. We always did. But of course, this wasn’t to happen. Navigating life without him would shortly begin.

Yet it didn’t begin in a way that is usually associated with grieving a loved one because of COVID restrictions. The standout one being it was nearly three months before I was hugged by someone other than my daughter. The first hug after the loss of my husband came nearly three months after he died. That’s not normal. Whether you’re a hugger or not, physical contact is so important when you’re grieving. I have not hugged my best friends. I have not hugged my mum. It wasn’t until nearly three months after he died that family and friends were allowed into our house for the first time.

Ironically enough, it was the first time we went to friends for afternoon tea that I ended up facing another first. My daughter fell off her scooter and I had to take her to minor injuries. As the nurse went through the questions she had to ask, she came to ask for her father’s details. I responded with “he passed away in April, do I still need to tell you?”. She looked so apologetic, I felt for her. She was just doing her job but for me it was much more than that. We went and sat in the waiting room for an x-ray and I cried. I cried because my daughter might have a broken bone. I cried because I’d just had to tell someone else in an official capacity that my husband was dead. A first that I hadn’t really thought about that would happen, but one that hit me so very hard.

And then I think of all the other firsts that I know I’ll have to do over the coming weeks and months. Just with my daughter there are a number: parents evening, dance shows, starting secondary school, swimming lessons, a theatre trip, a holiday, the ‘baby group’ Christmas Party. And for me, there are several things I’ve not been able to do and will need to do for the first time. Since my husband died, I’ve not been in a room with both my sister in laws and my father in law. I don’t know when or if that will happen for the first time, but I know his presence will be so dreadfully missed. I’ve not been in a room with the wider family. I’ve not been able to get together and reminisce with his Sunday League football team. I’ve not been for a big night out with friends. I’ve not had to deal with a hangover and my daughter by myself! I’ve not been in a large group of people sharing memories and smiling or crying at them. I’ve not hosted an Easter or fireworks party at our house, something we used to do every year. To be perfectly honest, the thought of doing all these things for the first time feels me with fear. Because I’ve become quite adept at being in my house, being with my daughter, only speaking to people via screens. How will I cope when I start to see more people? What will happen when people can hug me? Will I feel comforted? Will I break? Will I want to run away and hide from it all?

It was C.S. Lewis who famously said, “No one ever told me that grief felt so like fear.” And not only do I feel fear at the future, but I’ve felt it over the past year of grief and firsts. Fear as to what happens to my daughter if something happens to me. I felt it when the UK raised the terror alert last Autumn. How can I possibly go to London for work if the terror threat is raised? What if something happens to me? I can’t have my daughter being an orphan, I need to wrap myself in cotton wool. But again, this isn’t possible. This is something I need to work through. And again, fear was so present when I had to take our puppy to an emergency vet late one evening last week. He’d eaten something he shouldn’t have, and they had to make him be sick to prevent it getting stuck. “There’s a risk of asphyxiation with doing this” the vet told me. My stomach dropped. I felt sick. I felt fearful. I wanted to cry. How could I possibly drive home and tell my daughter that our puppy had died? The main thing is that the puppy is absolutely fine and was far less traumatised by the experience than I was! But as I went and waited in the car for him last week, I realised for the first time how quickly I now jump to the worst-case scenario. If someone tells me the worst that could happen, I immediately assume it will. Because it has. My husband died; he didn’t come home. Other than losing my daughter, I can’t think of anything worse than that.

As I sit here now, a week out from my final first date, I don’t know how I’ll manage all the firsts that will come after this milestone. I don’t know how different year two will be. How different it will feel. I wonder in a bizarre way whether it will actually be harder. Because there is a greater chance with lockdowns easing that I’ll have to start living my life without him. I do know that no matter how fearful I am, that I can’t continue to hide away in my house. I need to be with people who are also grieving the loss of Mr C. Because it’s all part of keeping him part of our lives in the future.

Life begins…

So that’s it. The end of my first week as a 40-year-old. And as the saying goes, life begins at 40…

I always used to joke with Mr C that I wasn’t going to turn 40. You see every time I’d turned a different decade, something had gone wrong. My 20th birthday was spent with him in hospital having his first chemotherapy session. Shortly before my 30th birthday, he’d been made redundant scuppering all our plans, I ended up with food poisoning over the birthday weekend and my mum received a health diagnosis just after my birthday. So, when I had to dial 999 in the early hours of my 39th birthday, I joked with Mr C that he was a year early. I joked with him and the paramedics that he was going to extremes to get out of buying me a birthday card. I didn’t for one second think he’d never be here for my 40th. We’d been together since my 18th birthday party, how could he not be here for my next big birthday?

But sadly, my 40th was to be my first big birthday without him. And the penultimate of the first dates in this rollercoaster year. People rallied round me in the run up to it. People were concerned how I was going to cope. I couldn’t have asked for more. But the reality was, the hardest moment came the day before my birthday. My daughter went out with my mum and stepdad “to do things” and I was on my own for a little while. It hit me at this point. Mr C really wasn’t here. He wasn’t coming back. My daughter was having to enlist the help of other family members to help surprise me and buy me gifts. I sat and reflected. I cried. But then as I’ve had to do so many times, I had to take a deep breath and tell myself I could do this. For at that time, some friends popped round to see me. Because 29 March saw the first lockdown easing meaning people could meet in gardens again. Living in Kent, this hadn’t been able to happen since November. Life was beginning again. Just in time for my 40th.

When I woke up the following morning, I was under strict instructions not to go downstairs until my daughter gave me permission. She’d been worried about how she could decorate the house and lay my presents out for me as I go to bed after her. It was something she hadn’t really thought of until that moment and said to me “it’s hard doing this with only one parent. How am I meant to do this on my own?” Another reminder that it’s just the two of us now. But decorate and lay out presents she did. She’d thought so carefully about what to buy me, one of the gifts being a London Lego set because she knows how much I’m missing going to London and wanted me to have a reminder in my home office. As I drove her to school, she asked what my plans were for the day. She’s a little worrier and when I told her I was working; her worries were alleviated. “That’s ok then, they’ll look after you” was her response.

She was right. My first call of the morning saw people join with balloons and banners in their backgrounds. Messages were sent throughout the day.  A birthday call in the afternoon with my amazing team even saw a goat called Lulu join from Cronkshaw Fold Farm. I can honestly say that in my 40 years I’ve never had a goat wish me a happy birthday! It was such a lovely touch. And of course, Jason Donovan played a part. Dressed in a birthday hat and banners, he was part of all the conference calls throughout the day, moving to the garden as family visited.

Again, life was beginning. The weather was glorious. Daffodils and tulips were blooming. Family and friends came and sat in the garden. I had lunch with one of my closest friends. My nephew ran around with our puppy for the first time. My daughter and her cousins played football with their grandparents. All things that 18 months ago, we’d have taken for granted.

On Thursday, two more friends came to the garden armed with prosecco and cake. The weather wasn’t quite as glorious, we all had to wrap up in coats and blankets (I forgot I owned a firepit which could have given us some heat), but it felt like another new beginning. I’ve missed this. I’ve missed sitting and talking with friends. I’ve missed hearing about what’s going on in other people’s lives. But above all else, I’ve missed human interaction not via a screen. Admittedly, I drank the most prosecco I had in a very long time, had a hot bath to warm up when I came in from the garden and ended up dozing off quickly. After all. I’m 40 now, I can’t stay up too late!

It’s also felt fitting that the Easter weekend has come at the end of this first week. Another reminder of new beginnings. Easter Sunday saw us do a 6k walk with friends. Seeing my daughter laughing, running and just being a child with her BFF was so uplifting. She’s craved this normality. She needs her life to begin again.

So, as I sit here now, I can’t help but be thankful. For anyone who follows me on Twitter and Instagram, you’ll know how important this is to me and why it’s such a huge part of my life. I’m thankful for the continued amazing support from our family and friends. I’m thankful for my amazing team and colleagues who have essentially been my scaffolding holding me up for the last year (shiny and thin!). I’m thankful for the weather turning and the sun starting to appear more.

But, after the most turbulent year as a 39-year-old, I’m thankful for starting to feel a bit more like me again. The pre COVID me will never return. I know that. She’s gone forever. But there are elements of her that are still there. A friend said to me last week that she hoped I didn’t mind her saying it, but she wanted to tell me she’d seen a bit of a sparkle in me again on my birthday. It meant the world to me. Because she’s right. I felt it too. Who knows whether it was turning 40 that did it, the change in weather, the ability to see people in person again, the first birthday without Mr C being out of the way or a mixture of all of these? But whatever it was, this spark and the people around me will see me through.

Life begins at 40. Who knows whether this is true? For while I don’t know what the next decade will bring for me, I do know that it’s begun with hope and the ability to look forward. I can’t ask for more that.